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Headsup BlogHuntington’s Disease Awareness month – #SpeakOut4HD

Huntington’s Disease Awareness month – #SpeakOut4HD

4th July 2023 by Headsup Neurological Physiotherapy Ltd. Leave a Comment

What is Huntington’s Disease?

It is a progressive brain disorder that leads to uncontrolled movements, changes in how you think
and emotional problems. Symptoms most commonly appear between the ages of 30 to 40 years
old.

What causes Huntington’s Disease?

It is a genetic condition caused by inheriting a defect in a single gene from one of your parents

What are the symptoms?

Huntington’s Disease has a wide range of signs and symptoms, which appears first varies from person to person and symptoms can change throughout the progression of the disease.

Changes in activity and movement :

  • Involuntary movements such as jerking or writhing movements which can travel around the
  • body
  • Stiffness or contractures in the muscles
  • Difficulties with walking and balance
  • Changes in eye movements
  • Difficulties with speech and swallow
  • Changes in how you think (cognitive function)
  • Difficulty focusing/organising/prioritising a task
  • Tendency to get stuck on a certain thought, action or behavior – inflexibility/perseverance
  • Difficulty in controlling impulses ‘acting without thinking’
  • Lack of awareness of behaviours
  • Slow to process thoughts, difficult to find the right word
  • Challenging to learn new information
  • Changes in emotions (caused by the damage to the brain and not as a response to the diagnosis)
  • Feeling irritable, sad or apathetic
  • Withdrawing socially
  • Insomnia
  • Decreased energy levels
  • Frequent thoughts of death or self-harm

Can physiotherapy help?

YES!!! Research shows that increased levels of physical activity has several benefits in Huntington’s
Disease:

  • Increased quality of life and confidence
  • Improved balance
  • Able to walk further and faster
  • Prevention of stress and aggression
  • Decreased symptoms of anxiety and depression

Have a look at http://eurohuntington.org/active-huntingtons/ and https://www.hda.org.uk/media/1602/move-to-exercise.pdf for advice on how to get active with Huntington

Where can I find further information about Huntington’s Disease?

https://www.hda.org.uk

http://eurohuntington.org/

If you think physiotherapy will help you to increase your activity levels then please contact us on 01306
888171
or email [email protected]

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Come and work with us at Headsup! Neuro-Rehab. Call Sally on 01306 888171 or send us an email

Heads up! – Conditions treated

  • Recent strokes (within the last 6-months)
  • Long-term Strokes
  • Parkinson’s
  • Multiple Sclerosis
  • Brain Injury
  • Spinal Cord Injury
  • Neuropathies – Polyneuritis and Other Polyneuropathies
  • Balance and Dizziness Problems
  • Adults with Cerebral Palsy
  • Vestibular Disorder
  • Elderly Rehabilitation
  • Other Neurological Conditions

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